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  • Family Teaches Language
    a possibility in the fall He has immense gestalt able to put things like baby lego together without seeing the end product first He appears to have excellent comprehension of what is said to him and his speech is at the level where we all try to figure out if he really made a word He has some babble which sounds great but is not attached to word meaning although the body language skills are excellent Three Words at 22 months I figured out that Deh hie is Dessie his companion and protector The SS is clearly missing Dessie is a german shepherd collie who is devoted to Jonathan When Jonathan sits in his high chair to eat not his favorite thing to do he puts one piece of food in his mouth and drops an equivalent piece of food for the dog who is right under the high chair If he does not like supper Dessie gets it all He says Mam for his mom Dad y for his dad So three words at his age is about as bad as Reid was at the same age He had a speech assessment which Ross went to as well and found himself dealing with a defensive speech pathologist who implied grandparents and parents don t know much Imagine She had not heard of my book Hanen My daughter was referred to a Hanen course which was given on the day after she moved so the Hanen course will have to wait Well I took the Hanen course too many years ago and would have found it useful for Barbara who had verbal apraxia but it was not useful for Reid because it was not modified for children with hearing losses I remember feeling at the time that the course was one more obstacle which I had to overcome to get to a speech pathologist for my child and I knew the tricks already from the years of speech pathology I had with Barbara At the time Jonathan was born the aims of the Ontario Healthy Baby program were still hearing and speech around three years which is unacceptable of course Jonathan is really still running under the previous expectations with the system patting itself on the head for getting there a head of time but even identified with a mild hearing loss he is in wait mode one way or another Problems He is tongue thrusting which he seems to think is speech When other children tongue thrust we pushed the tongue back into the mouth and discouraged it as any form of speech at a much younger age I flutter my tongue behind my teeth when Jonathan tongue thrusts and sometimes I make a TH with the tongue between my teeth and use a TH word at the same time He is still drooling a lot always having a wet t shirt I wondered if the drooling is postural meaning his head is down so the drool comes out

    Original URL path: http://www.hardofhearingchildren.com/Great%20Information/family_teaches_language.htm (2016-02-01)
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  • Manners!
    quite possible that the increased frequency of ADHD has two reasons one that the system is looking for it and two that the children do not burn off their physical energy before being expected to sit down Schools Taught Respect to the Teacher First We had a framework of manners at school which involved being respectful to the teachers When a teacher entered the room the students stood up and stopped talking When a teacher walked down the hall the children stepped to the side of the hall to make way for the teacher If a student was sitting on the only chair the student knew s he must give the chair to the teacher The teacher had to give the chair to the principal The chair always went to the oldest or to a pregnant lady I have encountered many teachers who had no manners themselves and poor management skills over the line of public bullying especially towards kids with handicaps mainstreamed in ordinary classes The school system also bullies the parents into accepting less than their child with special needs needs to have as support at school to succeed So I am not surprised when bullying develops at school I also understand the anger and frustration which goes on and on unresolved by the bureaucracy at the expense of the child with special needs Say Ta If you are only going to learn one word Ta would be the word It acknowledges a give take relationship When the child does not say or think Ta they become turned inwards A long time ago at a week course at E C Drury many parents of deaf kids thought they were making the child s life easier by providing and not demanding a Ta Ta is an early phoneme and part of the give and take of communication between two people the first step towards a conversation Monkey See Monkey do PArents set the greatest example to the children It is not enough to demand the child be polite The family must be polite to each other first as an example which is seen by everyone all the time We know that hard of hearing kids need to hear everything at least ten times more than normal children so too good manners need to be constantly used Slightly raised voices to help the hohchild to hear in less than optimum hearing always sound mad or irritated or scary Thus it is important for the hard of hearing child to know that warm fuzzies are floating around More hugs as well as using the child s name before talking to him her are the simple basic manners for communicating with anyone with a hearing loss I spend a vast amount of time thinking someone is mad at me because I have asked for clarification on a statement which I did not hear correctly and someone is PO ed at having to repeat again I spent a lot of time working on

    Original URL path: http://www.hardofhearingchildren.com/Great%20Information/what%27s%20new%20nov%202005%20manners.htm (2016-02-01)
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  • Conferences, Special Camps, Respite
    to drive to San Diego but it is too far and expensive The Canadian dollar melts in the US and very few parents can afford hotels etc If I ever planned a conference it would be in the cheaper hotels surrounded by all the cheap restaurants Paula Rosenthall from the Hearing Exchange will be speaking at the A G Bell conference I hope you all will go and listen to Paula speak A G Bell published my book which was the first book in the world about hard of hearing children In 1998 I wrote a proposal to speak on the Application of the UN Charter of Rights for Children with special needs and how it had yet to apply to the hoh kids in the cracks Being rejected by your own publisher really sucks Thank you Liz Quigley for all your work for A G Bell I was at the Utah convention for my book launch for which Liz Quigley did so much work In 2000 in Philly A G Bell thanked someone else not Liz Liz wore 5 hats at A G Bell from publications to conferences to editing With all this work to do at a time when not everyone had computers she worked long and hard and selflessly and just in case nobody else says anything about the work Liz did for A G Bell Thank you Liz Special Camps Some kids never know there are loons on a still lake until they get to camp One of my sons worked at a camp for children who needed one on one care Whenever we dropped in I was surprised and warmed by the smiles with which these delicate kids were surrounded The counsellors would have to work as a group to provide trampoline time for each child what an experience for a child who spent his her life in a wheelchair The surprise and joy on the bouncing child s face was wonderful Many of the staff at this camp were local teenagers who went to the local high school I felt that the camp did not provide adequate witnesses at Diapering time The first issue was the privacy of the client so the camp provided privacy by diapering being done by the counsellor in the cabin I worried that at some unknown point in the future my son would be accused of abuse and he would not have a leg to stand on because he was always alone as were all the counsellors As the parent of a special needs child myself I thought the disabled children were also being put at risk of abuse by this privacy issue Respite Needs for Caretakers Part of the purpose of this camp is to provide desperately needed respite for the child s caretakers As I grow older I realize how respite from Reid might have enabled me to spend more time with his siblings I dealt with my need for respite by trying to forget the hearing

    Original URL path: http://www.hardofhearingchildren.com/Great%20Information/conferences,%20camps,%20respite.htm (2016-02-01)
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  • Surviving Holidays
    maximised for him If there is loud music turn it down or off Turn the TV off Most people in the family will just need a little hint because they are not sure how to communicate with your child Don t leave the child even for five minutes with anyone who is not going to be competent or caring My mother in law decided Reid could hear fine when he was a toddler Reid could never be left with his grandmother for even 5 minutes because she would start in on him I tried to explain to her but her mind was made up Family gatherings became for me occasions which required intense recooperation for a week per day Tired removes social coping skills The driving to family makes the kids tired and you too but you can cope with tiredness while it strips away the child s language and social skills When Reid was little when he was passed throwing himself on the floor screaming from coping in bad acoustics especially if the hearing aids had been forgotten Yes I forgot the hearing aids from time to time He would start running around the room quite incapable of stopping himself not eating not still until we left the gathering We called that squirreling and it was common observable behaviour for several years around 5 to 8 years old Traditionally the hard of hearing child removes themselves from social situations when they are tired by going to a quiet room or dominating the computer You have to find a balance between too tired to cope and avoiding verbal situations Memories are not made playing solitary games If your hard of hearing child retreats to a bedroom with a book or solitary game I suggest dragging him or her back to

    Original URL path: http://www.hardofhearingchildren.com/Great%20Information/surviving_holidays.htm (2016-02-01)
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  • Toys for HoH Children
    little children ahead scholastically so they can be Einsteins when they grow up Children have very definite flight plans to develop and they must spend time on each level of development If you by pass crawling with a walker you may have learning disabilities at the end The child must crawl to learn about the world and the child s relation to the world and time Saw a fascinating study on TV with crawling children and Dads the child was allowed to crawl anywhere and what they found was that the child crawled 50 feet in different directions always keeping an eye on the parent and the distance and immediately self correcting when the crawling took the child too far So be patient with your child and let them play with age appropriate toys which are beautiful and fun The Best Teaching Program is You If you are thinking about a great program to teach spelling or develop speech remember the best speech development scenario is one to one between interested listeners and speakers and the next generation does not need to spell they have spell check Do you want a pot for Christmas Working Parents Replace Themselves with More Expensive Presents Parents who work have much more money to spend on children s presents and attempt to compensate for not being there due to work reasons with toys to please the child and perhaps keep the parent in the active memory box If you don t think this is a motivator let me tell you that I clearly remember asking my mother what my father looked like when I was 5 in 1955 my father had been at the hospital for 6 weeks delivering babies and I had not seen him I forgot who he was and worried about it Perhaps my mother remembered my sister running screaming from the house in 1944 when my dad returned after many years overseas and was hugging my mother to ask my grandmother Who is that man kissing Mummy I was taken to the hospital to see Dad in between babies Absent Parents Parents whose paths have separated from the child s daily life often use the holidays as a chance to be expansive Other parents do the opposite No matter what a separated parent does or does not do about the holidays it will be noted Difficult Competition from Working Parents Parents who don t go out to work for money have far less money to spend and often feel quite frantic with all the push to buy more expensive junk that is not really needed Simple Gifts SO in my opinion the best toys are the simple ones crayons paints paper building blocks building toys dolls little cars for colour sets stuffed animals and books cameras film Any toy I ever bought had to work with half it missing For the hard of hearing child you must assess each toy with the potential of self isolation which these kids do

    Original URL path: http://www.hardofhearingchildren.com/Great%20Information/suggested_%20toys.htm (2016-02-01)
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  • Too Loud,Eh? Dec 2005
    cards on the PC for years Interesting though the songs which I liked the best like White Rabbit are barely audible Getting Music Just loud Enough Will used to play the record player when he was little One day he picked up my newest needle which had cost about 45 and put it on the paten of the record player This was the first year that CD s were around and my husband replaced the record player with a CD player Our first two CD s were the Planets by Holst and Tubular Bells by Mike Oldfield There was so much more of tubular bells on the CD it was like listening to an entirely new fascinating work and I had the sound cranked up Reid was boogying for the first time to the jig then the music got quiet and he threw himself on the floor screaming Put dah moosic back We could hear it but he could not In the wonderful movie Mr Holland s Opus the father was trying to accomplish the same thing by having the child sit on the speaker Even though the CD player through amplifier to speakers ability to crank the music loudness was very high we usually did not turn the music up for Reid Eventually someone else turned it up and blew the speakers It might be a good idea to mark with a sharpie marker the loudest you want your music systems played Reid had a very expensive pair of earphones with volume control which fit his audiogram and he could turn up the volume without deafening the rest of us In the movie Beethoven lives Upstairs they showed Beethoven lying on and under his piano trying to hear it cutting the legs off the piano One of my first

    Original URL path: http://www.hardofhearingchildren.com/Great%20Information/too%20loud%20eh.htm (2016-02-01)
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  • In a hospital
    be this stressful for everyone We only get two sets of teeth and high school seems a little young to be wearing out teeth from stress Next we went to a walk in clinic because our GP was not available and acquired a diagnosis of infected sinus prescription for pain killers and antibiotics Two days later Reid saw the GP who sent him to Emergency and he was admitted on the million dollar IV A day after he was transferred to a major urban hospital and the third antibiotic finally worked Both hospitals had a notice saying the hospital was not responsible for hearing aids At the second hospital the nurse was insistent Reid wear his hearing aid so she could talk to him Admirable but I had a vision of 3500 hitting the opposite wall and sliding to the ground so we forgot the hearing aid at home The ENT did not send Reid for audiology after being on these drugs or make a recommendation that he go back to his audiologist So now Reid is famous for having the worst sinus infection any of these doctors had seen As either Ross or I was with Reid at either

    Original URL path: http://www.hardofhearingchildren.com/Great%20Information/in_a_hospital.htm (2016-02-01)
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  • Gardening with the hoh child
    wildflowers or dandelions Last week Jonathan the great purloined the first daffodil to give to his mother She was so happy too she wanted to keep that moment forever New House Unknown Garden I moved in January to a new house which has a magnificent garden in fact a daunting garden In the warmest most protected spot right out my bedroom window masses of hyacinths and daffodils have emerged The spring garden is a present from one gardener to another If you know enough to recognize the tiny shoots of crocuses the delicate violas which will be there now edelweiss and a dark green ground cover which has little blue star flowers You go out and liberate the shoots and get an idea of the last gardener Gardening is Great activity for a Family with a hohkid Gardening is one of those things which you can do with any child but it is particularly good activity for a hard of hearing child because you are not shouting at each other across large spaces you are close together If you want the child to learn duty and working you can insist that the child prepare the earth plant the seeds water the plant and learn Chances are 50 50 whether the plant will live or die when I am gardening anyway I think it is more fun to have to child do some part when s he is in the right mood the adult determines a watering schedule thus keeping an eye on the plant and whoever sees it first announces the emergence of a cotyledon Living in Canada you can start your own seeds inside which is seldom successful for me or you can go to the good nurseries and buy baby plants Last year I did an adapted garden

    Original URL path: http://www.hardofhearingchildren.com/Great%20Information/gardening_.htm (2016-02-01)
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