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  • fundraising Archives - Canadian Association of Pompe
    Region given to both Annette and CAP at our 2015 Conference in Montreal The award was presented to Annette by Pascale Rousseau Directrice des services Division du Québec This is a very special award please read the letter below Recent Posts Inequities Between Provinces in Treating Rare Diseases Rare Disease Strategy Urgently Needed to Help 3 Million Canadians BioMarin Announces Interim Analysis of INSPIRE Clinical Trial in Pompe Disease at

    Original URL path: http://www.pompecanada.com/blog/tags/fundraising/ (2016-02-13)
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  • Gaucher Archives - Canadian Association of Pompe
    of Canada facilitated by Emma Rooney developer of www mynormal ca You ll leave this workshop with practical ideas and next steps for how to get started on your own story project Recent Posts Inequities Between Provinces in Treating Rare Diseases Rare Disease Strategy Urgently Needed to Help 3 Million Canadians BioMarin Announces Interim Analysis of INSPIRE Clinical Trial in Pompe Disease at 34th Annual J P Morgan Annual Healthcare

    Original URL path: http://www.pompecanada.com/blog/tags/gaucher/ (2016-02-13)
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  • gene therapy Archives - Canadian Association of Pompe
    patients with serious rare diseases today announced its support for Rare Disease Day to be held on February 28th 2015 The theme of this year s Rare Disease Day is Living with a Rare Disease In honor of the day Audentes is pleased to announce the launch of a website Recent Posts Inequities Between Provinces in Treating Rare Diseases Rare Disease Strategy Urgently Needed to Help 3 Million Canadians BioMarin

    Original URL path: http://www.pompecanada.com/blog/tags/gene-therapy/ (2016-02-13)
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  • getting treated Archives - Canadian Association of Pompe
    Annette Sebey had her first infusion in her home province today July 28 2014 New Brunswick announced the New Brunswick Drugs for Rare Diseases Plan This plan provides reimbursement for treatment of five rare diseases including Pompe New Brunswick Announces Plan to Treat Patients by CAP Jul 28 2014 Press Releases The provincial government has established the New Brunswick Drugs for Rare Diseases Plan which will provide assistance to those with certain rare diseases who face high drug costs New Brunswick will partner with Ontario to deliver the plan using its Drugs for Rare Diseases Framework The framework was established to assess drugs using the best available evidence and recommend drugs for funding based on clinical criteria Woman with Rare Disease Protests at NB Legislature to get Treatment by CAP Apr 16 2014 News Still struggling to receive the same treatment that patients in other provinces receive Annette Sebey of Perth Andover New Brunswick celebrates International Pompe Day in front of the NB Legislature N B woman with rare disease finds hope in Hollywood by CAP Mar 16 2010 Awareness A New Brunswick woman with a rare genetic disease hopes the release of a new Harrison Ford movie on Friday

    Original URL path: http://www.pompecanada.com/blog/tags/getting-treated/ (2016-02-13)
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  • grants Archives - Canadian Association of Pompe
    Feb 28 2012 Press Releases CAMBRIDGE Mass BUSINESS WIRE Genzyme a Sanofi company EURONEXT SAN and NYSE SNY today announced its support of International Rare Disease Day with a series of events to celebrate and recognize the global rare disease community Amicus Therapeutics Awarded Grant From Muscular Dystrophy Association for Pompe Disease Program by CAP Feb 7 2012 Press Releases CRANBURY N J Feb 7 2012 GLOBE NEWSWIRE Amicus Therapeutics

    Original URL path: http://www.pompecanada.com/blog/tags/grants/ (2016-02-13)
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  • guest blogger Archives - Canadian Association of Pompe
    multiple disabilities opens you up to a different perspective about life I believe that this has helped shape me as a better person I d like to share these lessons and insights with you Recent Posts Inequities Between Provinces in Treating Rare Diseases Rare Disease Strategy Urgently Needed to Help 3 Million Canadians BioMarin Announces Interim Analysis of INSPIRE Clinical Trial in Pompe Disease at 34th Annual J P Morgan

    Original URL path: http://www.pompecanada.com/blog/tags/guest-blogger/ (2016-02-13)
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  • Int'l Pompe Day Archives - Canadian Association of Pompe
    is excited to announce that the international Pompe community has chosen April 15 2014 as the first annual International Pompe Day Recent Posts Inequities Between Provinces in Treating Rare Diseases Rare Disease Strategy Urgently Needed to Help 3 Million Canadians BioMarin Announces Interim Analysis of INSPIRE Clinical Trial in Pompe Disease at 34th Annual J P Morgan Annual Healthcare Conference Sanofi Genzyme Announces Recipients of Patient Advocacy Leadership PAL Awards

    Original URL path: http://www.pompecanada.com/blog/tags/intl-pompe-day/ (2016-02-13)
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  • IPA Archives - Canadian Association of Pompe
    is excited to announce that the international Pompe community has chosen April 15 2014 as the first annual International Pompe Day Recent Posts Inequities Between Provinces in Treating Rare Diseases Rare Disease Strategy Urgently Needed to Help 3 Million Canadians BioMarin Announces Interim Analysis of INSPIRE Clinical Trial in Pompe Disease at 34th Annual J P Morgan Annual Healthcare Conference Sanofi Genzyme Announces Recipients of Patient Advocacy Leadership PAL Awards

    Original URL path: http://www.pompecanada.com/blog/tags/ipa/ (2016-02-13)
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