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  • late-onset Archives - Canadian Association of Pompe
    Late Onset Pompe Patients Meets Co Primary Efficacy Endpoints Date December 13 2007 Genzyme Corp Nasdaq GENZ announced today that its Late Onset Treatment Study LOTS of Myozyme alglucosidase alfa met its co primary efficacy Recent Posts Inequities Between Provinces in Treating Rare Diseases Rare Disease Strategy Urgently Needed to Help 3 Million Canadians BioMarin Announces Interim Analysis of INSPIRE Clinical Trial in Pompe Disease at 34th Annual J P

    Original URL path: http://www.pompecanada.com/blog/tags/late-onset/ (2016-02-13)
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  • living with Pompe Archives - Canadian Association of Pompe
    than a movie by CAP Jan 22 2010 Awareness A new Harrison Ford movie hits close to home for an Alberta teen Extraordinary Measures now in theatres tells the true story of a father s quest to find a researcher who could develop a treatment for Pompe disease a rare neuromuscular genetic condition afflicting Recent Posts Inequities Between Provinces in Treating Rare Diseases Rare Disease Strategy Urgently Needed to Help

    Original URL path: http://www.pompecanada.com/blog/tags/living-with-pompe/ (2016-02-13)
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  • meetings Archives - Canadian Association of Pompe
    eve of Canada s Health Ministers meeting in Vancouver the Canadian Organization for Rare Disorders CORD and the Economic Club of Canada convened a panel calling for the immediate implementation of Canada s Rare Disease Strategy 2015 CAP Conference and AGM Save the Date by CAP Mar 2 2015 News We re very excited to announce that the 2015 CAP Conference and AGM will be held in Montreal Quebec June 20 21 2014 CAP Meeting Save the Date update by CAP Feb 19 2014 Events We re very excited to announce that the 2014 meeting of the Canadian Association of Pompe will be held in Fredericton New Brunswick June 20 23 2013 CAP Meeting Save the Date by CAP Mar 27 2013 Events The 2013 Canadian Association of Pompe National Meeting will be held in Toronto June 8 9 Flashmob Rare Disease Day Amsterdam by CAP May 30 2011 Events The Dutch Rare Disease Day was celebrated in Amsterdam A big surprise was planned for all participants The Dutch Genzyme team in close collaboration with the organizing committee had organized an unannounced spectacular end to the meeting Recent Posts Inequities Between Provinces in Treating Rare Diseases Rare Disease Strategy Urgently

    Original URL path: http://www.pompecanada.com/blog/tags/meetings/ (2016-02-13)
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  • Muscular Dystrophy Canada Archives - Canadian Association of Pompe
    Region given to both Annette and CAP at our 2015 Conference in Montreal The award was presented to Annette by Pascale Rousseau Directrice des services Division du Québec This is a very special award please read the letter below Recent Posts Inequities Between Provinces in Treating Rare Diseases Rare Disease Strategy Urgently Needed to Help 3 Million Canadians BioMarin Announces Interim Analysis of INSPIRE Clinical Trial in Pompe Disease at

    Original URL path: http://www.pompecanada.com/blog/tags/muscular-dystrophy-canada/ (2016-02-13)
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  • MyNormal Archives - Canadian Association of Pompe
    of Canada facilitated by Emma Rooney developer of www mynormal ca You ll leave this workshop with practical ideas and next steps for how to get started on your own story project Recent Posts Inequities Between Provinces in Treating Rare Diseases Rare Disease Strategy Urgently Needed to Help 3 Million Canadians BioMarin Announces Interim Analysis of INSPIRE Clinical Trial in Pompe Disease at 34th Annual J P Morgan Annual Healthcare

    Original URL path: http://www.pompecanada.com/blog/tags/mynormal/ (2016-02-13)
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  • newborn screening Archives - Canadian Association of Pompe
    2015 Press Releases TORONTO Sept 11 2015 The Canadian Association of Pompe CAP today submitted a nomination for Pompe disease to be considered for addition in Ontario s newborn screening panel In recognition of Newborn Screening Awareness Month CAP urges Newborn Screening Ontario to expand its program to include this rare neuromuscular condition Without early diagnosis and treatment infants with this rare genetic illness are not likely to survive past

    Original URL path: http://www.pompecanada.com/blog/tags/newborn-screening/ (2016-02-13)
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  • Orphan Drug Framework Archives - Canadian Association of Pompe
    the right diagnosis specialist and treatment On the eve of Canada s Health Ministers meeting in Vancouver the Canadian Organization for Rare Disorders CORD and the Economic Club of Canada convened a panel calling for the immediate implementation of Canada s Rare Disease Strategy Canadian Organization for Rare Disorders Welcomes Announcement of Orphan Drug Framework by CAP Oct 3 2012 Press Releases TORONTO Oct 3 2012 The Canadian Organization for

    Original URL path: http://www.pompecanada.com/blog/tags/orphan-drug-framework/ (2016-02-13)
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  • Orphanet Archives - Canadian Association of Pompe
    of Orphan Drug Framework by CAP Oct 3 2012 Press Releases TORONTO Oct 3 2012 The Canadian Organization for Rare Disorders on behalf of the 2 8 million Canadians with rare disorders welcomes Health Minister Aglukkaq s announcement of the first ever Canadian framework to increase access to new treatments and information and the launch of Orphanet Canada Recent Posts Inequities Between Provinces in Treating Rare Diseases Rare Disease Strategy

    Original URL path: http://www.pompecanada.com/blog/tags/orphanet/ (2016-02-13)
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